

Good design comes from knowing when to do something daring and when to practice restraint. If a design element doesn't solve a problem, signal meaning, or serve a purpose, it's likely superfluous.
After serving as a clinical research coordinator across multiple projects at numerous satellite sites and all three main campuses of the University of California, San Francisco, I joined the EngageUC team piloting a new simplified consent form for biobanking to replace the longer form then-in-use throughout the university system statewide. I was a research assistant. However, aware of my design work on the U-Find-Out and Vaccination Is Prevention studies, EngageUC's study team asked if I could create something that would help our project stand out in presentations, as other EngageUC sites across the UC system had done.
My only constraints were UCSF’s brand guidelines. The solution was straightforward: an orange rectangle highlighting white text, matched to the height of the Clinical and Translational Science Institutes Venn diagram logomark. The result is a clean identifier that catches the eye while seamlessly slotting in to institutional visual standards. UCSF's guidelines specify Helvetica Neue 45 Light as the default weight, so the EngageUC wordmark uses Helvetica Neue 55 Roman- itself a mildly subversive decision when others might choose 65 Medium or 75 Bold.
The taped UI containers on this page? A gentle nod to the community engagement workshop that enabled this paper.
Design is tension.
Great designers calibrate accordingly.

Main Project Objectives
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Standardize & simplify biobank consent forms across all five University of California medical schools.
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UC San Francisco
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UC San Diego
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UC Davis
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UC Irvine
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UC Los Angeles
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Engage broad coalition of diverse stakeholders to shape the future of biobanking at the institution.
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Assess administrative feasibility across the UC, with broad coordinated efforts with institutional officials including IRBs and UC Office of the President.
Major Success!!!
Simplified consent form resulted in better comphrension assessment scores, fewer "don't know's", and donated to the biobank at higher rates than those reviewing the longer standard consent form.
Among the first research teams to implement and examine the impact of simplified consent in a real-world setting rather than asking about hypothetical situations.
A version of the 1.5 page consent form assessed in this trial for biospecimen collection is currently used in both research and standard admissions for many if not all medical appointments at the University of California medical campuses.
Creative Objectives
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LOGO:
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Create EngageUC logo to visually distinguish UCSF working group among the 4 additional medical campuses.
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Compliment pre-existing Clinical and Translational Sciences Institute Venn logo.
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Complement other medical school campuses EngageUC logos.
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Maintain University of California Branding Guidelines
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VIDEO EDUCATIONAL TOOL:
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Complete storyboard development and narrative for a 4-minute educational video on biobanks and ethical research processes at University of CA.
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Develop video that easily communicates biobank concepts visually for wide range of non-English speaking community members.
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Significance of Study Scope
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The five UC medical campuses serve more than 13 million patients of diverse health literacy, ethnicity, and socioeconomic status.
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Given the University of California's size, diversity, and research focused mission, UC policies may become models for other institutions.
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Brings together three major stakeholder groups
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research administration
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biobank leadership
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diverse communities
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in order to develop coordinated UC-wide policies for biosample-related human subjects/ participating patient protections and biorepository operations and governance that could serve as a model for institutions nationwide.
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Innovative approaches include but not limited to:
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We address all four dimensions of biospecimen coordination whereas other projects have addressed or analyzed fewer.
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We purposefully involved community representatives in the policy creation process through the practice of deliberative democracy.
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The major innovations of this study are its extension of deliberative democracy to include diverse, non-English speaking community members, its coordinated approach and its commitment to policy translation in order to implement an improved system for biorepository research within the University of California.
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Supplemental Video Education Aid Development
By the time I joined the team, the biobank education video was nearly ready for evaluation and already looking excellent. It expertly adapted messaging on a complex topic for general audiences. My only note: include women and women scientists among the personas represented.
The animatic was revised post haste. Though a small adjustment, it had a meaningful impact on the inclusivity of the piece. A critical attribute for engaging patients navigating care throughout the University of California medical system, where many important choices about treatment and research participation intersect.
For some viewers, this four-minute video may be their first introduction to the role ethics review boards play in human subjects research, along with the core principles that guide their work:
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Beneficence
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Justice
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Respect for persons
Educational tools that represent scientific process carry a quiet responsibility. Depicting the full range of people who make scientific progress possible helps ensure these tools reflect the communities they serve- and the communities invited to participate.
Simulated screenshot, recreated from memory to protect confidential research materials.

Protip: Simple illustrations amplify messaging and enable easier recall for everyone. See: Memes.
PUBLICATIONS
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Garrett SB, Koenig BA, Brown A, Hult JR, Boyd EA, Dry S, Dohan D; in collaboration with UC BRAID. EngageUC: Developing an Efficient and Ethical Approach to Biobanking Research at the University of California. Clin Transl Sci. 2015 Aug;8(4):362-6. doi: 10.1111/cts.12259. Epub 2015 Jan 10. PMID: 25581047; PMCID: PMC4499012
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Dry SM, Garrett SB, Koenig BA, Brown AF, Burgess MM, Hult JR, Longstaff H, Wilcox ES, Madrigal Contreras SK, Martinez A, Boyd EA, Dohan D. Community recommendations on biobank governance: Results from a deliberative community engagement in California. PLoS One. 2017 Feb 24;12(2):e0172582. doi: 10.1371/journal.pone.0172582. PMID: 28235046; PMCID: PMC5325297.
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Murphy M, Garrett SB, Boyd E, Dry S, Dohan D. Engaging Diverse Stakeholders to Inform Biobank Governance. Biopreserv Biobank. 2017 Aug;15(4):393-395. doi: 10.1089/bio.2016.0061. Epub 2017 Feb 2. PMID: 28151003; PMCID: PMC5582586.
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Garrett SB, Murphy M, Wiley J, Dohan D. Standard Versus Simplified Consent Materials for Biobank Participation: Differences in Patient Knowledge and Trial Accrual. J Empir Res Hum Res Ethics. 2017 Dec;12(5):326-334. doi: 10.1177/1556264617731869. Epub 2017 Oct 16. PMID: 29037106; PMCID: PMC9137040.

PORTFOLIO: FEATURED GLOBAL HEALTH PROJECTS






